Shining a Light on Angelman Syndrome
Angelman Syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births or 500,000 people worldwide. Angelman Syndrome is characterized by developmental delays, intellectual disabilities, speech impairment, movement and balance problems. Those with AS are often recognized as having a very “happy” demeanor. While present from birth, symptoms become noticeable between 6 and 12 months of age. It’s a lifelong condition, requiring ongoing support and care. For more information, please go to the Angelman Syndrome Foundation website:
“Raising Awareness, Inspiring Hope”
Our Mission
LJ’s Wings was established in honor of our son, LJ, an amazing child with a big heart, and an even bigger smile! LJ’s Wings strives to build awareness and support for LJ and others dealing with the rare diagnosis known as Angelman Syndrome. We fight to get supportive legislation passed, to make special needs aids and financial assistance more attainable, and to support the Angelman Syndrome community as a whole.
Our Goals
There are many challenges that come with caring for someone with special needs – financial to emotional, and everything in between. LJ’s Wings Foundation strives to help families deal with these frustrations in a variety of ways including, but not limited to legislative recognition for increased financial assistance; fighting to increase insurance coverage for special needs equipment; and assistance/more assistance with caregiver affordability, as many of these caregivers need to be medically trained to handle the special physical needs of those they are caring for. LJ’s Wings also works to provide emotional assistance, via awareness and support groups/activities.